Dynamic Consent: A Tool for Improved Patient Involvement in Research
Lecture Theatre 1
Alan Gilbert Building
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Personalised medicine will fundamentally change the role of the consumer within healthcare, and is already present in initiatives that focus on shared decision-making. New digital tools are being introduced to engage with patients, and support their participation in research or clinical studies. Dynamic consent is one such tool. It provides oversight for how data and samples are being used, and allows consumers to change their consent decisions over time. This places significant responsibility on the autonomous patient, while increased centralisation and the emphasis placed on the consumer to manage their data raises questions around cybersecurity. Do tools such as dynamic consent help or hinder the cybersecurity of health data?